In pain...

I am on day 4 or something like that of a headache. I have taken all of my headache meds and nothing is working. So here I am once again just trying to make it through the day. It SUCKS!

I just want to go and lay down. And I can't. I really wish someone would stick a needle in my head and just pull it back a little relieve just a tiny bit of tension. That is all it would take. It is just so miserable!

I am scared I am going to overdose on pain meds. I want to take a hydrocodone but I need to be able to function at work. So here I sit and suffer...

I got the weirdest call on Saturday...

One of my mom's best friends daughter was just diagnosed with Chiari! I mean seriously what are the odds?? She has a 5mm herniation. She just gave birth not too long ago and had been having strange symptoms. She is so relieved that she has someone to talk to! I know how lost she is feeling right now as I was in her shoes just a year ago!! Now I feel like I know everything. Although I am far from being a scholar!!

Who else freaks out ...

when your 5 year old comes into your room this morning while you are getting ready for work and tells you he has a headache right at the base of his skull?? Only parents with rare head diseases that's who! Let me tell you my heart stopped beating for a minute and I started playing 20 questions with him.

He played kicked ball at school yesterday and I asked if he got hit with ball and he says mom that ball is not going to hurt me. He played rough with daddy last night and daddy lifted him up kind of weird and that was the move that put a strain on his head and neck. NEVER AGAIN! We don't know if my boys have CM1 or not and I don't want to do anything that could progress it in anyway!!

Talk about freak out moment!!!

He was better by the time we left for school.

Yesterday was another bad day...

By 10:30am I had to go home from work. I had taken my Tramadol and that hadn't even dulled the pain. I was leaning back in my chair at work and knew it was not going to a productive day. I realized this was going to be a day better spent just lounging on the couch. So that is what I did...

Went to the dr.

I went to the dr. for my refill visit. My dosage was upped because I have been having headaches a little more frequently. I am now taking 3 pills of Topamax at night. Let's see how that goes. I was also told to try really hard to stick to the Tramadol and not take the Excedrin because too much Excedrin can give me an ulcer in the long run. And that would not be fun.

Disney + Chiari

Do not equal the Happiest place on earth....

So I went to a conference in California. Had a BLAST!! Went to Disney...

And although it looks like I am smiling. I am so dizzy it isn't even funny. Space Mountain used to be my most favorite ride in the whole world. NOT ANY MORE!!!!!

We rode a few more but the ride that really did me in was The Materhorn... I tighten my neck on that ride for fear of whiplash and ended up with a 3 day headache of DEATH!!!

Seriously no amount of drugs would make it go away. I even took hydrocodone and it didn't even make a dent....

We are headed back to Disney in November and taking the boys. I now know that I will not be riding Space Mountain or the Materhorn!!!

Ebay auction for a good cause...

Please check out this auction, bid and win!!

My good online friend makes these dresses and has recently made one for a celebrity!

Fairy dress auction

Today I am not feeling so good...

Gosh... How I wish it weren't Sunday... Then I could have the pharmacy call in a new prescription of Tramadol. But it is and I can't. I have already taken 4 Excederin... And that hasn't helped... Seriously my head and neck feel like they are going to explode from the tension. I just want some relief!!! I am going to go ahead and call the pharmacy to put a call into the dr. tomorrow morning. I want to be prepared!!!

This has not been a good week.

I don't know if it is the weather or what, but my head has felt absolutely AWFUL this week!! I wake up with a headache and have to take my Tramadol by midmorning. The good thing is I can usually get the headache to go away by lunch... I thought maybe I am not eating enough for breakfast, so yesterday I got Mickey Ds. Nope that didn't work.

I HATE HEADACHES!!!!