I found this post on a fellow Chiari's blog and boy she hit the nail right on the head (all puns intended!)
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http://chiariandsyringomyeliaincanada.blogspot.com/2007/11/but-you-look-fine.html
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This is blog focuses strictly on living with an uncommon and silent disease. I am going to use this to catalog symptoms and my everyday emotions of dealing with Arnold Chiari Malformation Type 1. http://www.medicalzebras.com/chiari1malformation.htm
1 comment:
I would love to read this blog entry but it locks up my computer every time I open it.
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