I had my neurosurgeon appointment yesterday. And like my PCP had thought I have Chiari Type 1 Malformation. And basically that means my cerebellum sits to low in my skull and it pushes on my spinal cord and also messes with the flow of spinal fluid. My herniation is around 7mm. Anything over 5mm the course of action is surgery. I am now schedule for Subopcipital decompression surgery on May 7th. The surgery entails the dr removing a 2x2 inch square from the back of my skull as well as a C1 lamenectomy, the removal or partial removal of my 1st vertebrae on my spine.
The surgery will take about 6 hours and I will be in ICU over night, then I will be in the hospital for around 4 days. I an unable to go back to work for a month and unable to drive for at least 2 weeks.
I am working on getting a 2nd opinion, but wouldn’t you know it all dr. close at noon on Friday. Everything I have read online shows the same thing and that this dr is not too off on his diagnosis. Please pray for us, me Travis and the boys as you imagine Travis isn’t taking it too well and I am scared to death.