So what did everyone think??? I for one am even more nervous now for my surgery. But I am super happy that this very unknown condition was highlighted on national TV. Publicity is helpful when searching for a cure!
I spoke to the neurologist today, he says that he and his NP talk daily about their patients and he would be doing the same course of action his NP is following. I said I am not having migraines. He then tells me that Chiari doesn't cause headaches. ARE YOU KIDDING!!! That is like the #1 symptom! I now know I am not returning to him EVER! Do you research. Just a simple search on google about Chiari and one will see that headaches are a symptom. He then tells me he has many Chiari patients and I had to bite my tongue to keep from saying wow you have them fooled huh.
I also found a local Chiari group. They have monthly meetups and I can't wait to meet others like me!!