Just a quick plug for Extreme Home Makever.
On October 21st they will be helping a family whose mother and daugther have Chiari Malformation.
Here is a link to their story!
This is blog focuses strictly on living with an uncommon and silent disease. I am going to use this to catalog symptoms and my everyday emotions of dealing with Arnold Chiari Malformation Type 1. http://www.medicalzebras.com/chiari1malformation.htm